Patient Influence on Future of Health Care

" Our health care isn't focused today across the midwest actually the president of Chicago's speaking to the American Medical Association. Trying to convince the doctors group Betty you'll public private health care insurance plan. Is the best way forward but what do health care executives themselves think. All of go back to Detroit and Alexis -- with the latest on this Big Three day national summit event."

" All right behind you very much joining me right now as Benjamin he would this is the president and co founder. -- patient and polite -- its feet and and to be here thank -- let's first and foremost what she -- patients like me and explain to people why he started coming."

" But they have so. At patients like me we build free -- for patients who might change illnesses and what's different about what we view recently. Help them share structured health information that's outcomes treatments and symptoms. All the time and away. That helps them learn from others like them and ultimately find out what happens to patients like you to something. Information that they can't get elsewhere in the health industry right."

" Now -- an opportunity for patients to share any information with one another and at the same time. Perhaps free 87 an invasion in. With products and drugs that are directed toward those patients who is offering action sort of as a research model absolutely. We partner --"

" Industry around -- help in order to help them bring patient voice into their organization and really understand how to create better products and services. That we take the information the patient care amongst themselves and help the teller."

" And we sell that data to harm to companies payers and and medical device companies to help them develop at a product."

" If something was started because -- run yup. Tell us about your brother and how much progress has been eaten his yeah so originally starts my brother was diagnosed figures he's he's back in 1998 and I'm. Pushing past couple years ago but I think. What's amazing about the community that we developed an analyst at one of our most vibrant communities and expertise."

" Is really the power of the information -- on a number of cases capturing almost point indictments patient. US -- last sharing information and help each other and help the research and that industry really make strides towards at apart from the."

" These units. Opened a lot of that health care reform you're -- and panelists and I hitters today humanity Yale and M as CEO are going to be talking to me just moments. What do you think that you want people to understand about the future of health care reform. I think really to truly reform the health care system if it back to putting patients in control in this tenor of their own. Health care and to do that -- a lot of things I think transparency is very important. One is transparency of costs on to its transparency of information and access to healthcare -- 2000 -- All locked up in silos and as one of the things that makes our company's success as he opened his philosophy that we have from the hearing health care makes it. How patients are really willing to share that information if you can't get anywhere else. That's not change because they can participate patients like me without divulging too much personal information. Mean things of that nature so there's a protection but salt there's also an opportunity. How does that translate into results. Felt life that we -- actually on the number where she capturing. -- in an MS we now have thirteen thousand patients really carrying a lot of and they. It's actually Henderson. Diagnosed patients and no we've worked with a number of partners to in that million dollars to really. I'm move there they're researching their platforms sports I think -- and then on the patient side and really every day we. We get stories that he's really making a difference in -- small example -- you know they have percent of our faith in her car accident changed their doctors. Thank you to really be offensive. The power back to getting the best information. It's starting to. It actually allow patients understand it hold on health annually doing something with the epilepsy community right right now. -- know we're very excited to announce our first industry partner development community with apathy working in front -- UTV. And on what what their interest in looking at is the comparative effectiveness of all of therapies in epilepsy. Across you know all the therapies would that mean really huge number patience and that's probably only possible models like -- patients are -- carrying partnering with industry. Yeah interesting listed in the best of luck and sounds like you're doing all those technological innovations to create greater transparency. Some in the administration talking a lot about thank you I think it's very."